Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!
Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin
Mechanical Heart Valve support group for people who are having mechanical heart valve & artificial & plastic heart valve replacement surgery
Latest Activity
James Cohen replied to Martina's discussion Malaria medication with Warfarin"Martina, another reason why Coaguchek are such a good idea. It reduces the risk and certainly makes me happier travelling. I am just back from China, where the diet was "interesting" - not sure what the Vit-K qualities of…"
Martina replied to Nicolae Ciobota's discussion Post surgery hernia"Hi Nicolae,
I’m so very glad to hear your review went well. Also, it is really good to hear you sounding so positive – you have had it tough but only you can change your life. I was sorry to hear you have Post surgery hernia but…"
Videos
Photos
RSS
Loading feed
Forum
Malaria medication with Warfarin 2 Replies
Hi AllI'm planning a trip to South Africa soon - safari - I've been before and usually take Malarone tablets but now that I'm on Warfarin I need to watch what medication I take. I'm going to see my Doctor in a few days but just wanted to post a…Continue
Started by Martina in Mechanical Heart Valve - My story.... Last reply by James Cohen May 25.
Post surgery hernia 1 Reply
I noticed this bump under the incision. I had my 8 months review at ST George and valve and aortic arch replacement are great!Fantastic even.Warfarin is good too 3.2 (ideal 3.5) and i do like my wine now that i dont smoke. Red wine.Since surgery i…Continue
Started by Nicolae Ciobota in Mechanical Heart Valve - My story.... Last reply by Martina May 25.
Waiting for aortic arch replacement? 6 Replies
Hello all I had a stent placed 10 years ago in my aorta due to a narrowing not found at birth, but during my pregnancy last year it collapsed and now I'm looking at a total aortic arch and valve replacement if it cannot be repaired has anyone had…Continue
Started by Kerry in Mechanical Heart Valve - My story.... Last reply by Nicolae Ciobota May 23.
new to cite - 2nd surgery in june - want to play basketball 3 Replies
My 13 year old is getting a mechanical valve in June. He loves basketball. Any thoughts or input for us?Continue
Started by Keaton Johnson in Mechanical Heart Valve - My story.... Last reply by Nicolae Ciobota May 23.
My story 9 Replies
I am 39 year old female who had a mechanical aortic valve fitted in February this year. I went to the doctor on numerous occasions with breathlessness and tightness in the chest, but as i am an asthmatic it was always put down to this, and i was…Continue
Started by Michaella Gurden in Mechanical Heart Valve - My story.... Last reply by Martina May 19.
On-X Life Technologies Submits for FDA/CE Approval of Reduced Anticoagulation Indication for On-X Aortic Heart Valve 4 Replies
If approval is received, the On-X valve will become the first aortic valve that allows patients to be maintained at levels of anticoagulation below currently recommended professional society guidelines, helping to lessen anticoagulation-related…Continue
Tags: trial, INR, valve, heart, reduced
Started by Graeme in Mechanical Heart Valve - My story.... Last reply by Keaton Johnson Apr 4.
Surgery on Monday 23rd BAV and aortic graft 164 Replies
Hi allI m glad that I found this website. I'm 38 healthy and athletic. After a bad cold back in March my GP told me I have a heart murmur and after my first echo at Frimley the doctor told me I will need a valve replacement in the next few years.I…Continue
Started by Nicolae Ciobota in Mechanical Heart Valve - My story.... Last reply by Anne Jones Apr 3.
On-X valve in NHS 1 Reply
Hi,I read the news about "On-X Life Technologies Submits for FDA/CE Approval of Reduced Anticoagulation Indication for On-X Aortic Heart Valve" in Forum and their website. Looks very promising. Warfarin is a big put off to me.I heard NHS hospitals…Continue
Tags: on-x
Started by Eric in Warfarin/Coumadin. Last reply by Graeme Apr 2.
Coagcheck: Self testers - do you ever have a hospital INR check? 11 Replies
I have been self testing now for one year. When I first went on to self testing, I went to the hospital where they compared my coaguchek reading with a venous sample. I have not been asked to come back since for a hospital check or to see a warfarin…Continue
Tags: roche, warfarin, test, self, inr
Started by Madeleine M in Mechanical Heart Valve - My story.... Last reply by Martina Mar 27.
Phew... 6 months waiting... but finaly its done 11 Replies
Well finally the surgery went ahead on 13 Feb... Then the real fun began, I was Kept under anaesthetic for an extra 9 hours due to an internal bleed that wouldn’t stop... on transfer into the High Dependency Unit I developed a chest infection that…Continue
Started by Antony Bambrough in Mechanical Heart Valve - My story.... Last reply by Antony Bambrough Mar 26.
Blog Posts
Hi Martina, Sorry not replyed sooner as no computer for a while! Thanks for your reply. Hope you are keeping well and still busy cycling!! My scar seems to be feeling alot better and think the bio …
Hi Martina,
Sorry not replyed sooner as no computer for a while!
Thanks for your reply.
Hope you are keeping well and still busy cycling!!
My scar seems to be feeling alot better and think the bio oil is helping. My…
ContinuePosted by Lee-Anne Bray on May 10, 2013 at 22:22
mechanical heart valve: My story
About four years ago, I had a chest x-ray. Something didnt look right, so they had me do a cat scan. Then found an aneurysm in my aorta. Close to my aortic heart valve. It was 4.7cm. Every year I had another cat scan. Last year they found it had…
ContinuePosted by michael pierce on May 1, 2013 at 23:16
One Year on
Hi All
I'm one year post Op and all is well - I'm feeling great.
I just wanted to say a BIG thank you to all on this wonderful site - you helped me through the tough times Pre & Post Op and it was very much…
ContinuePosted by Martina on April 13, 2013 at 17:31 — 4 Comments
Update
Hi all... Thought I should post an update as its been a while since I was on the site.. So much been happening (non valve related) and still waiting for the op... been cancelled 3 times on account of a number of infections, odd as I normally dont…
ContinuePosted by Antony Bambrough on February 7, 2013 at 1:19
Op due on Wednesday
Well bags packed off for my 5* All inclusive hols to Derriford hospital tomorrow ready for op on Wednesday. ( aortic valve and Ascending aorta replacment). Think i just need to get my "huggy" ready and hopefully sorted! Will keep you posted in…
ContinuePosted by Lee-Anne Bray on January 14, 2013 at 21:15 — 18 Comments
The Genetic Gift
"You say both your parents had bicuspid aortic valves?". The doctor looked concerned.
You ought to know, you jerk; you've been my doctor for how many years, you were Daddy's doctor when he died after his second valve replacement, I thought…
ContinuePosted by Tina Phillips on January 10, 2013 at 21:38
Happy New Year to you all
Hi All
Just wanted to wish you all a very Happy New year & thank you all again for all your support over the last year.
I continue to recover very well, now over 8 months post Op.
Hope you all have a…
ContinuePosted by Martina on December 30, 2012 at 23:10
Exercise and reduced vital capacity
I had my aortic valve replaced in July and generally have recovered really well. In the past I have been very fit but had to reduce my exercise significantly for the last 4 months before surgery. 12 weeks after my op I started running again and… Continue
Posted by Peter Rodin on December 24, 2012 at 12:34 — 1 Comment
4 months post op, Mitral Valve Replacement with St Jude mechanical heart valve
I have spent the last 7 weeks in Cardiac Rehab twice a week. I found it really beneficial and you can work gently at your own pace. Our local council offer a discount for their fitness programmes under the exercise prescription scheme. The…
ContinuePosted by Janet Hogger on December 19, 2012 at 9:21 — 4 Comments
OTHER IMPORTANT LINKS
OR - Use the QR Code above
LIFELONG MHV MEMBERS
Badge
© 2013 Created by Graeme.
