Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

Mechanical Heart Valve support group for people who are having mechanical heart valve & artificial & plastic heart valve replacement surgery

Latest Activity

Debra Rose Brillati is now a member of Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!
Jun 5
Profile IconTaryn, Edward Emerson, Elizabeth Dodds Ott and 3 more joined Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!
May 22
chris gidney replied to chris gidney's discussion Mycobacteria chimaera
"Thanks Tim. Interesting. I will keep an eye out for any symptoms!"
May 1
Tim Grey replied to chris gidney's discussion Mycobacteria chimaera
"Yes.  It has something to do with the blood warming machine in common use, worldwide, between specific dates (not sure which, 2012 to 2015, I believe).  Not much to do about it but be aware of symptoms such as fever, night sweats, massive…"
Apr 30

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St. Jude Medical® Mechanical Heart Valve

St Jude Mechanical Heart Valve

Forum

Shortness of breath 8 weeks post mechanical AVR surgery

I had my surgery 8 weeks ago (On-X valve) and then needed a pacemaker 5 weeks ago.  I am going to rehab and can do treadmill, bike, etc. at increasing speed and resistance with no SOB.  But if I walk up the stairs, or bend over and then stand up and…Continue

Tags: breath, of, Shortness

Started by Debra Rose Brillati in Living with a Mechanical Heart Valve Jun 5.

Mycobacteria chimaera 2 Replies

Has anyone had a recent letter from NHS regarding a device used in open heart surgery which is linked to a rare bacterium infection?

Started by chris gidney in Mechanical Heart Valve - My story.... Last reply by chris gidney May 1.

Dentistry antibiotic cocer? 10 Replies

I'm due to have a tooth extracrion & find there is still some disagreement over whether antibiotic cover is still required. Does anyone have recent experience of this? I'm three years since my avr.

Started by chris gidney in Mechanical Heart Valve - My story.... Last reply by John French Apr 29.

Meet ups? 1 Reply

Hope everyone had a good click click Easter. Now in my 4th year of a new aortic valve and wondering if any of the sitest members ever meet up?

Started by chris gidney in Living with a Mechanical Heart Valve. Last reply by Tim Grey Apr 26.

Detached retina caused by haemovitreous 1 Reply

I had a Mitral Valve Replacement (mechanical) 4 years ago and been getting on with life since. But I had a scare in May this year when I was on a one week holiday in Barcelona and suddenly lost vision in my right eye. It turned out to be a massive…Continue

Started by Janet Hogger in Mechanical Heart Valve - My story.... Last reply by Martina Dec 23, 2016.

Bass noise makes valve flutter?

Has anyone else had the strange experience of the mechanical aortic valve responding to loud, low noise? I've had this twice now, once with a motorbike roaring past. The other was last night at the theatre sitting 2nd row back near bass speakers ro…Continue

Started by chris gidney in Mechanical Heart Valve - My story... Sep 4, 2016.

Bass noise makes valve flutter?

Has anyone else had the strange experience of the mechanical aortic valve responding to loud, low noise? I've had this twice now, once with a motorbike roaring past. The other was last night at the theatre sitting 2nd row back near bass speakers ro…Continue

Started by chris gidney in Mechanical Heart Valve - My story... Sep 4, 2016.

A Newfoundlander's Experience with a new Mitral Valve 5 weeks post op. 9 Replies

Hello everyone. Thank you for the information provided on this site... I wish I had discovered it before surgery. I am a 45 year old structural engineer from Newfoundland, Canada. I was diagnosed with a mitral valve prolapse in the early 90's and I…Continue

Started by Tony Roberts in Mechanical Heart Valve - My story.... Last reply by Tony Roberts Aug 31, 2016.

All OK this summer ? 6 Replies

Salut All !From sunny Toulouse, very hot the last few weeks - between 28°c and 42°c, a bit difficult but all OK. What's happening, no posts, no correspondence ... is this because we are all as fit as a butchers dog ?Happy holidays to you all, have a…Continue

Started by Kevin David Parvin in Mechanical Heart Valve - My story.... Last reply by chris gidney Aug 26, 2016.

Pulmonary Homograft Failure 2 Replies

Hi I had a double valve replacement in 2011 a St Jude Mechanical valve to the aorta and a Homograft to the pulmonary artery. In less than a year I once again started suffering from Pulmonary Stenosis it is now severe with moderate to severe…Continue

Started by Chris in Mechanical Heart Valve - My story.... Last reply by Chris Jun 20, 2016.

Blog Posts

Bass noise makes valve flutter?

Has anyone else had the strange experience of the mechanical aortic valve responding to loud, low noise? I've had this twice now, once with a motorbike roaring past. The other was last night at the theatre sitting 2nd row back near bass speakers ro… Continue

Posted by chris gidney on September 4, 2016 at 9:12

4 years post op !

Goodness me ! it is now 4 years since my tick tick thump Sorin valve became part of me. All is well, no problems INR spot on thanks to Coagucheck. Lots of sport, healthy eating (a few cheeky reds) and…

Continue

Posted by Kevin David Parvin on August 13, 2016 at 18:01 — 2 Comments

Warfarin by the Kilo.. :-)

OK - hows this for a statistic! Since my Aortic Dissection and replacement of my aortic Valve 13 YEARS AGO last week - I have chewed my way through 1/3 of a kilo of warfarin ..and 2 kilos of Atenolol.. scary! 13 Down - 17 to go! :-)

Posted by Graeme on April 28, 2016 at 17:31

ticking valve

Hi , new on here.Had my titanium aortic valve 25 years ago,am fit,but my ticking valve has gradually changed to a normal sounding heartbeat, is this normal?. 

Posted by david moore on March 10, 2016 at 16:41 — 1 Comment

Health Update & Membership: Mechanical Heart Valve Support Group

Hi all,

hope all had a lovely Xmas and have started a bright and shiny New Year on a positive spin.... and the Xmas pounds (certainly hope not kilograms!) are now being attacked vigorously in the gym and bracing 10 mile bicycle…

Continue

Posted by Graeme on January 19, 2015 at 15:01 — 2 Comments

Atrial Fibrillation

Hi all,

I stumbled upon this forum and I’m so glad that I did. Reading your posts, I have already learned much about my condition from the people who really know. Thank you to every member who has posted on this site.

I…

Continue

Posted by Steve Blake on December 30, 2014 at 11:09 — 4 Comments

Help!

i am living with a mechanical aortic valve (i am 17) and trying to convince my dr 2 let me play basketball for the school, can someone help me get some credible sites and some proof to backup that I can play basketball 

Posted by quintin david meldrem on October 7, 2014 at 5:39

** Important Information for all MHV members**

Hello everyone - I hope you are all well, healthy and happy and enjoying our wonderful summer (Northern Hemisphere!)

 

Firstly, my apologies for not being more active on both this, our  (…

Continue

Posted by Graeme on July 25, 2014 at 13:33 — 14 Comments

Charity Bike ride - 48 miles

Hi All

Just wanted to let you all know I did a 48mile (~77km) charity bike ride at the week, for British Heart Foundation. Two years post Op and I did it under my own power – I’m very happy to report I feel fine. The hills were tough but…

Continue

Posted by Martina on May 20, 2014 at 20:35 — 3 Comments

Hodgkins Strikes Back!

so here's the deal: in 1975 when I was 19 years old, I was diagnosed with Hodgekins Lymphoma (stage three B,mixed cellularity, for all you amateur oncologists out there) and treated with both radiation (400 rad upper mantel) and chemotherapy ( four… Continue

Posted by shutterlab . on April 25, 2014 at 5:37 — 3 Comments

 
 
 

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