Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

Mechanical Heart Valve support group for people who are having mechanical heart valve & artificial & plastic heart valve replacement surgery

Latest Activity

Graeme replied to Graeme's discussion Patients Perception of Mechanical Heart Valve Sounds & Quality of Life...(Aortic Valves)
" Thanks Tim. Challenging times. Daily radiation till Jan 8 so head down and counting off the days now! cheers Graeme   "
Nov 4
Tim Grey replied to Graeme's discussion Patients Perception of Mechanical Heart Valve Sounds & Quality of Life...(Aortic Valves)
"Thanks Graeme.  I hope all is going well with your other medical challenge.  Tim"
Oct 20
Graeme replied to Graeme's discussion Patients Perception of Mechanical Heart Valve Sounds & Quality of Life...(Aortic Valves)
"Tim, no further study has been done on this to my knowledge. My post on another thread that you wil lsee covers the fact that you will get used to it..eventually! I'm 12 years on now and it is now just a minor irritation if too much physical…"
Oct 20
Graeme replied to Graeme's discussion Is your heart valve noisy ??
"Tim, you DO get used to it..eventually! Yes to all you have said.. its as we have on the site ..Tick. Click. Thump! Yes - exercise increases the 'thump' as does amorous trysts (;-) ) (thanks Kevin!) but a 2 inch memory foam mattress…"
Oct 20

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St. Jude Medical® Mechanical Heart Valve

St Jude Mechanical Heart Valve

Forum

Patients Perception of Mechanical Heart Valve Sounds & Quality of Life...(Aortic Valves) 6 Replies

Here's an interesting study from Germany that I found buried in some research papers on the web ...Detailed Description:Patient's perception of mechanical heart valve sounds: psychoacoustics and quality of lifeBackground: Approximately 90.000…Continue

Tags: jude, medtronic, st, ats, valve

Started by Graeme in Mechanical Heart Valve - My story.... Last reply by Graeme Nov 4.

Aches around valve years later

Hey Folks,            Hope you are all well! Its been about two and a half years since my mechanical valve was implanted. I was 29 at the time (bicuspid valve with aortic regurgitation). I recovered very quickly and I'm in relatively good shape,…Continue

Started by Bobby Thompson Jr. in Living with a Mechanical Heart Valve Nov 3.

Is your heart valve noisy ?? 103 Replies

Is it ever! - But I love it! YOUR thoughts and experiences in this discussion..how it affects you, your partner, sleeping with a mechanical heart valve, questions - any other points? Put it all down here!Continue

Tags: artificial, tissue, noisy, mechanical, valve

Started by Graeme in Living with a Mechanical Heart Valve. Last reply by Graeme Oct 20.

Warfarin showing little effect (advice please) 4 Replies

Hello, first I'd like to say that this is my first post and this site / forum really stood out to me. Great that it is a UK site and specific to mech valves plus some great reading on here.I was discharged from hospital on Friday 3rd October…Continue

Tags: effect, warfarin, INR, low

Started by Simon Cumming in Living with a Mechanical Heart Valve. Last reply by Simon Cumming Oct 13.

2 years on and Happy Birthday to SORIN :-) 2 Replies

So it's two years today since my SORIN aortic vale was fitted. Thanks to Graeme and all of you for your support and encouragement over this period.Love KevinContinue

Started by Kevin David Parvin in Mechanical Heart Valve - My story.... Last reply by Graeme Aug 6.

Possible Dodgy Email 2 Replies

Hi,    This is going to sound very garbled, for which I apologise, but I received an email to-day and wasn't happy with it - didn't sound right, possible phishing! - so immediately deleted it.  It was from a Frank K---- can't remember the name (wish…Continue

Started by John Hubbard in Mechanical Heart Valve - My story.... Last reply by Graeme Jul 31.

INR Home Monitoring 9 Replies

My name is Mary Zeigler and I will be celebrating four years with a St. Jude Mechanical heart valve on 9/24/2014 due to bacteria that caused an abcess on my aortic valve (normally found at autopsy). I was using Alere Home Monitoring to check my INR…Continue

Started by Mary Polley Zeigler in Mechanical Heart Valve - My story.... Last reply by Ryan Saccucci Jul 30.

Anxious 11 Replies

My daughter, 20yr old has had a mitral valve replaced with a mechanical one. She never had any health problems before just colds, till this year round May when she had pains in leg, arm there was never any swelling but the arm pain was severe whilst…Continue

Started by Casa Joya in Mechanical Heart Valve - My story.... Last reply by Martina Jun 12.

effect of herbal medicines with acitrom(equielent to warfin in india)

I am from India, my mitral valve replacement done in May 2007, I am patient of hypertension too. due to medicines of hypertension now i started suffering with savior IBS (irritable bowel syndrom) and constipation. i consulted many cardiologists and…Continue

Started by sunil kumar singh in Mechanical Heart Valve - My story... May 29.

alcohol and warfarin 15 Replies

I'm new to the forum, and 6 months into warfarin, so I was hoping to revisit the alcohol question.  In the US, the general recommendation is an "occasional glass of wine, etc." implying rarely and with caution.  My European friends, some of them…Continue

Started by Tim Grey in Mechanical Heart Valve - My story.... Last reply by Tim Grey May 20.

Blog Posts

Help!

i am living with a mechanical aortic valve (i am 17) and trying to convince my dr 2 let me play basketball for the school, can someone help me get some credible sites and some proof to backup that I can play basketball 

Posted by quintin david meldrem on October 7, 2014 at 5:39

** Important Information for all MHV members**

Hello everyone - I hope you are all well, healthy and happy and enjoying our wonderful summer (Northern Hemisphere!)

 

Firstly, my apologies for not being more active on both this, our  (…

Continue

Posted by Graeme on July 25, 2014 at 13:33 — 14 Comments

Charity Bike ride - 48 miles

Hi All

Just wanted to let you all know I did a 48mile (~77km) charity bike ride at the week, for British Heart Foundation. Two years post Op and I did it under my own power – I’m very happy to report I feel fine. The hills were tough but…

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Posted by Martina on May 20, 2014 at 20:35 — 3 Comments

Hodgkins Strikes Back!

so here's the deal: in 1975 when I was 19 years old, I was diagnosed with Hodgekins Lymphoma (stage three B,mixed cellularity, for all you amateur oncologists out there) and treated with both radiation (400 rad upper mantel) and chemotherapy ( four… Continue

Posted by shutterlab . on April 25, 2014 at 5:37 — 3 Comments

herbal medicines with Acitrom(warfarin)

 I am from India, my mitral valve replacement done in May 2007, I am patient of hypertension too. due to medicines of hypertension now i started suffering with savior IBS (irritable bowel syndrom) and constipation. i consulted many cardiologists…

Continue

Posted by sunil kumar singh on December 21, 2013 at 6:34

Well its been almost exactly 5 years since my last op, I am told im going to have to have one in the next couple weeks the valve i have now is to small as im only 16 so im still growing and the curre…

Well its been almost exactly 5 years since my last op, I am told im going to have to have one in the next couple weeks the valve i have now is to small as im only 16 so im still growing and the current valve is not big enough to help me so I…

Continue

Posted by quintin david meldrem on November 20, 2013 at 19:27

5 month post op check

Hi All, 

Sorry not been on this site for a while. Just to keep you posted as its 5 months since my aortic valve replacement.

I saw my Cardiologist this week and i had a few questions answered. I was due to have ascending aorta…

Continue

Posted by Lee-Anne Bray on June 29, 2013 at 21:23 — 1 Comment

Completed 45km Charity bike ride

Hi all,

I'm very pleased to say that yesterday I completed a 45km charity bike ride, for British Heart Foundation, around some lovely Suffolf Villages. It was a very well organised event. It’s about 14 months post Aortic Valve &…

Continue

Posted by Martina on June 24, 2013 at 14:52 — 1 Comment

Hi Martina,  Sorry not replyed sooner as no computer for a while! Thanks for your reply.  Hope you are keeping well and still busy cycling!! My scar seems to be feeling alot better and think the bio …

Hi Martina, 

Sorry not replyed sooner as no computer for a while!

Thanks for your reply. 

Hope you are keeping well and still busy cycling!!

My scar seems to be feeling alot better and think the bio oil is helping. My…

Continue

Posted by Lee-Anne Bray on May 10, 2013 at 22:22

mechanical heart valve: My story

About four years ago, I had a chest x-ray. Something didnt look right, so they had me do a cat scan. Then found an aneurysm in my aorta. Close to my aortic heart valve. It was 4.7cm. Every year I had another cat scan. Last year they found it had…

Continue

Posted by michael pierce on May 1, 2013 at 23:16

 
 
 

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