Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin
Anyone had any experience of this INR replacement? My local hospital; The Royal Berkshire, does not support it. This good for me as I travel extensively to places that don't offer INR.
Dear All - I am having an argument with my GP regarding self-testing - they also use the word insurance coverage, but I'm not sure what they exactly mean by that. My argument is that if they allow diabetic's to self test and self manage insulin, then why not someone who only really wants to self test and phone in the results. They've told me that I can myself on warfarin (but surely diabetics can do the same but quicker!) Is there anyone out there that can help me persuade them that this can be done at home safely and effectively.
Anne - Royal Berks will not support me, because they will not get the revenue from doing the tests themself. So it could be a simple as that (not that I agree). If you can get the test strips from your GP, it is a very cost effective method of management, and all the academic studies show your clinical outcome to be much better.
Even the Prime Minister said earlier this year, that self testing should be supported.
Sadly there are still lots of people in the medical profession who think "Dr knows best" and just are not interested in change, or what you want. Write to your hospital and ask the why they are refusing.
There is a patient charity called ACE (AntiCoagulation Europe) who actively assist people who have difficulty obtaining support from their GPs regarding self testing. Please send your deatils via email to Eve Knight at email@example.com.
If you could advise which town/county you live in I can check the local services offered in your region, which may help you in your GP discussions.
I can also send you some literature that you could share with your GP to reassure them that self testing/managing is a safe option when managed correctly.
I have sent a message to my team in Scotland and will feedback as soon as I have the information.
Best regards, Allison
I go to my GP and because I live in a small village in Fife, but work in Edinburgh which takes me 1.5 hrs to get to and from it means I need to take a 1/2 day off my annual leave to have this done.
Alison: I've emailed Eve, and many thanks for all the help.
Just had a letter from my GP surgery to say that they've agreed to my self-testing (but not yet managing) my INR. This will be a great advantage, as last week on holiday in the Lake District I had registered temporarily with a surgery in order to have it done - and guess what - they've lost my yellow book - sent it to Labs with sample and it's never been returned. I'm heading off to the Roche website to order the machine. GP will prescribe for the test strips. Thank you to everyone who has helped in my fight for this.
I m having similar problems with Frimley Park Hospital (like Royal Berkshire). They only have one anticoagulation nurse and I ve been told too that they will accept self testing but I wont need self testing?
As Martina I do love travelling lots and lots and and my job takes me away for weeks or months sometime abroad.
Allison how difficult is it to learn Self Managing? That would give me such independence rather than waiting for the letter from Frimley. And what do people mean by calibrating?
I am so pleased that you got the outcome that you wanted. Good luck using your CoaguChek. If we can be of any further assistance please do not hesitate to contact us.
Kind regards, Allison