Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Artificial Heart Valve Surgery & Living with Warfarin: UK Info Support Group

Marina May
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  • Chilliwack, BC
  • Canada
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PT/INR self testing ☺
9 Replies

Hi everyone.  I had aortic stenosis resulting from an long ago case of scarlet fever.  I had a St Jude mechanical valve installed, in New Westminster BC, in July of 2010.  Since, I have had several…Continue

Started this discussion. Last reply by James Cohen Nov 13, 2011.

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James Cohen replied to Marina May's discussion PT/INR self testing ☺
"Marina - go for it.  I think the GP/Hospitals are very slow to recognise that patients want to take responsibility for their own health - and in my case the hospital (who do the actual INR measurement) said in writing that they did not want…"
Nov 13, 2011
Marina May replied to Marina May's discussion PT/INR self testing ☺
"I appreciate the good advice about not "chasing my tail" in micro managing my INR.  The main reason I want to self test is to avoid the long drive into town, as well as to travel again.  I also hate having to wait for others to…"
Nov 13, 2011
James Barby replied to Marina May's discussion PT/INR self testing ☺
"I also have a Roche Coaguchek, and have had no problems with it.  Initially I struggled to get enough blood out of my finger but I've resolved that using the methods described previously - washing in hot water and squeezing from bottom to…"
Nov 13, 2011
Graeme replied to Marina May's discussion PT/INR self testing ☺
"Marina 8 years on warfarin now (since April 2003) It took a long time for mine to settle down as got a bad infection in hospital that necessitated me being on antibis for 6 months after getting my new valve.. but apart…"
Nov 12, 2011
Mike Mahler replied to Marina May's discussion PT/INR self testing ☺
"WOW!  I guess we are on the oppisite ends of the warfarin spectrum....  I am at 12 mg a day to hold at 3.0 to 3.5.  I guess for one thing, it makes it easy to adjust with the high dose, as a half mg is easy to work out of 12... …"
Nov 11, 2011
James Cohen replied to Marina May's discussion PT/INR self testing ☺
"The Roche XS is exactly the same to ue a glucose readings. As to the Warfarin, I think yours is a very low dose, but the way I get to 6.25mg is to take 6mg one day and 6.5mg the next.  I have 0.5mg tablets (white) - I would not recommend trying…"
Nov 10, 2011
Marina May replied to Marina May's discussion PT/INR self testing ☺
"Thank you for the reply James!  That is a lot of Warfarin you are taking!  I take just 1 mg and still go haywire.  I have been getting instructions from my physician to increase or decrease by .5 mg at a time.  I may suggest to…"
Nov 10, 2011
James Cohen replied to Marina May's discussion PT/INR self testing ☺
"Marina - sorry to hear you are having problems getting stable.    I have been on Warfarin for 6 years, and by and large have been lucky to be stable. I use the Roche Coagucek XS - it is easy to use, albeit it took be a little time to…"
Nov 10, 2011
Marina May replied to Marina May's discussion PT/INR self testing ☺
"Oh, and I almost forgot... This is a wonderful site! ♥"
Nov 9, 2011
Marina May posted a discussion

PT/INR self testing ☺

Hi everyone.  I had aortic stenosis resulting from an long ago case of scarlet fever.  I had a St Jude mechanical valve installed, in New Westminster BC, in July of 2010.  Since, I have had several complications with bleeding and wacky INR results ranging from way too low (1) to way too high (5.8).  I have been fairly stable for a few months now at ~1.8 to 2.5 on 1 mg of Warfarin, but am told it is still a tad low but they are afraid to raise my Warfarin even slightly as it usually leads to a…See More
Nov 9, 2011
Graeme left a comment for Marina May
"Hi Marina and welcome to the Mechanical Heart Valve Forum! Please jump right in and ask any of us any questions you have- we are all here to support you as well as one another - It takes time to get used to your new little friend in your chest…"
Nov 1, 2011
Marina May is now a member of Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!
Nov 1, 2011

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At 14:52 on November 1, 2011, Graeme said…

Hi Marina

and welcome to the Mechanical Heart Valve Forum! Please jump right in and ask any of us any questions you have- we are all here to support you as well as one another - It takes time to get used to your new little friend in your chest - but you will! I look forward to seeing you on the forums soon!

 

cheers

 

Graeme Archer

Founder

MHV Forum

 

  

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