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Artificial Heart Valve Surgery & Living with Warfarin: UK Info Support Group

Racer
Racer
  • Female
  • Bellerose, NY
  • United States
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Racer's Discussions

Diet/Nutrition
18 Replies

Other than the Vitamin K vs. Coumadin/Warfarin balancing act most of us are dealing with, any comments on your current diet?  Continue

Tags: vitamin, k, warfarin, coumadin, nutrition

Started this discussion. Last reply by Holly Allen Feb 22, 2011.

 

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Holly Allen replied to Racer's discussion 'Diet/Nutrition'
So i guess drinking a 6 pk of beer and a big plate of spinach salad won't work!!?? Kidding!!:) I may just start buying the .5 beer as I love the taste in the summer. Yes I was warned by my md about alcohol and even coffee,but nothing was really…
Feb 22, 2011
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Graeme replied to Racer's discussion 'Diet/Nutrition'
Hey Holly   I think I have covered this a few times in other posts but here's my take on alcohol and diet on warfarin again ... My 8 year anniversary for my AD and subsequent MHV implant comes up in April. My INR is rock solid apart from a…
Feb 22, 2011
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Sandra Emilianowicz replied to Racer's discussion 'Diet/Nutrition'
I was told by my Dr. not to change my diet, they would change the coumadin/warfarin around my diet.
Feb 21, 2011
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Holly Allen replied to Racer's discussion 'Diet/Nutrition'
I am still trying to figure what sets off my INR. I am often called after I get bloodwork done to double up because my INR is too low..1.2 when I should be at 2.7. Signs I have noticed when my blood is thick is I get a bad throbbing headache,and my…
Feb 21, 2011
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Racer replied to Racer's discussion 'Diet/Nutrition'
Richard, thanks for adding your info. clarifying affects of alcohol on inr. I had read that it could both increase or decrease inr,but, until now hadn't been able to ascertain what caused high or low inr.  This was very helpful.
Jan 21, 2011
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Richard Deal replied to Racer's discussion 'Diet/Nutrition'
i just re-read this and thought i would add what my doctors have told me about alcohol and what, from experience, i have found out. alcohol is a mild anti-coagulant. if you consume large quantities of alcohol once in a blue moon (normally…
Jan 21, 2011
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John Walters replied to Racer's discussion 'Diet/Nutrition'
When I started taking Warfarin last September I studied the vitamin K food lists in the booklets I was given, found them inconsistent (what about egg yolk and liver?), browsed the net and asked the hospital pharmacist for an authoritative list but…
Jan 21, 2011
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kathryn louise weitzel replied to Racer's discussion 'Diet/Nutrition'
Geez I don't know how to describe it two weeks ago I was in the hospital  on a drip because my blood got to thick. My liver had decided to re-adjust on it's own. I cannot eat anything dark green whatsoever. I eat Dr. Gourmet alot and…
Dec 30, 2010
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Jonathan F Bushey replied to Racer's discussion 'Diet/Nutrition'
Thanks Laura. I have not changed my diet/eating habits at all from before surgery as I was already on a 2,000mg of sodium a day diet and trying to watch my sugar and carb's intake as well. The doctor said I could have some caffeine in…
Nov 11, 2010
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Laura Chapman replied to Racer's discussion 'Diet/Nutrition'
Hi guys I was also told that Cranberries affected the metabolism of warfarin so avoid them, I also avoid grapefruit & grapefruit juice because I'm on statins (apparently it affects the liver and interferes with the way the statins work).…
Nov 11, 2010
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Richard Deal replied to Racer's discussion 'Diet/Nutrition'
as i understand it cranberries only have an effect with warfarin. i have always thought that coumadin was the trade name for phenprocoumon, but it transpires after a quick check coumadin is just another name for warfarin - i was put on marcumar…
Nov 8, 2010
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Jonathan F Bushey replied to Racer's discussion 'Diet/Nutrition'
Asked the Cardiologist today if he knew why cranberries and cranberry Juice and sauce are bad... His answer is that the metabolism created by the cranberries effects the coumadin's time and effectiveness. ~ Jonathan
Nov 5, 2010
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Racer replied to Graeme's discussion 'Warfarin - YOUR thoughts..'
yay! the steri strips are coming off. Somehow that seemed like a mini graduation to me. I work in the medical field and have encountered patients on Coumadin who state they feel colder than they used to. I have always tended to cold easy, and it…
Nov 3, 2010
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Racer replied to Racer's discussion 'Diet/Nutrition'
Jonathan, I also have not been told to avoid these things. Of course you must follow the advice that is specific to you. However, I am a firm believer in being very communicative with your health providers. Ask your questions, no question is wrong,…
Nov 2, 2010
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Racer replied to Graeme's discussion 'Warfarin - YOUR thoughts..'
Jonathan, Reading your comments brought back such memories of the difficulties in the time immediate post surgery. I had my surgery in 2007. I wanted to encourage you and say you will get there. Literally take one moment at a time. Also, as Laura…
Nov 2, 2010
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Graeme replied to Racer's discussion 'Diet/Nutrition'
Hey Jonathon.. Glad things r going along well..at the risk of being a 'know it all' i am going to stick my oar in here..as to cutting out completely - like forever..(!!) caffeine (coffee, tea, regular sodas, Chocolate..wtf? My docs have…
Oct 27, 2010

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At 11:57am on June 23, 2010, Richard DealRichard Deal said…
Hey there again Racer,
Check this link out:
White Paper on Accuracy
The manual is here:
Manual
I got the accuracy specs from the German literature (from Roche) I got whilst being trained on the CoaguChek. I cannot find it anywhere online... :(
all the information you should need will be here though:
Roche Diagnostics USA
Hope that this helps!
r
At 4:16pm on May 12, 2010, Richard DealRichard Deal said…
...continuation...
The important link is here:
CoaguChek - I have only gone so far as the splash screen so that you can get all of the different points of view about the product. Philips and INRatio also do self testers and if you do a search in Google for 'INR self testing' you can go to their websites.
hope that this helps!
r
At 4:15pm on May 12, 2010, Richard DealRichard Deal said…
i had a type I aortic dissection which basically mashed up my aortic valve - so my replacement valve is the aortic. My actual valve is a Conduit Medox model 514, diameter 27mm - buggered if I can find any information on it at all online...
My therapeutic range for INR is between 2.5 and 3.0 and I test myself using a CoaguChek XS testing machine from Roche Diagnostics. Maybe it is different here in Germany but my consultants and my GP were all in favour of me testing myself. There are apparently comfort issues if you are permanently taking blood from a vein and worst case it can lead to the collapse of the vessel. That was how it was sold to me, anyhow.
My friend who had her deep vein thrombosis, which resulted in a pulmonary embollism, only has to thin her blood for a year, but she managed to talk her doctor around and now has a CoaguChek herself. She is an American and, luckily for her I suppose, got the CoaguChek on Workers' Comp after a 3 month 'battle' with the government (her employer).
There are accuracy issues because you are getting the blood out of a capillary instead of from the vein, so you really need to be quick with the "prick, squeeze and dab". Like all things there is an accuracy range associated with the test strips (between 2.0 and 3.0 it is +/- 0.3 and above 3 it is +/- 0.5). You do still need to have comparison readings every 6 months or so but actually managing your own condition is sometimes an important psychological step along the road to recovery - at least it was for me!
Cost-wise it was something around the 1000 Euro mark which my insurance company here was obliged to pay and I get through a test strip and a needle (lancet) a week. If I miss a tablet or something out of the ordinary happens I measure more often, just to be sure.
...continued...
At 12:37pm on May 10, 2010, Richard DealRichard Deal said…
hey racer,
welcome to the group, and sorry for the delay in approving - i saw your application last night as i was drifting off to sleep and because i didn't think i would be in a position to write a welcome i put off approving you... ;)
i know relatively little about mitral valves and their replacement, but from reading your information it appears that you can notice an improvement in your overall health. I have had friends that have had very serious issues with "coumadinisation" which appears to last 3 or 4 months before they settle down. to give you an idea (i was one of the lucky ones) i take 3mg coumadin a day and measure my own inr weekly and am relatively bombproof at an inr of 2.5 - 2.8... my friend was taking 12,5mg coumadin a day and was fluctuating between an inr of 1.8 and 4.0... and all that simply for a deep vein thrombosis...
anyway, welcome aboard! don't be scared to post your story, and definitely don't be scared to chip in where you feel it pertinent,
r
 
 
 

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