Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

All Blog Posts (121)

Bass noise makes valve flutter?

Has anyone else had the strange experience of the mechanical aortic valve responding to loud, low noise? I've had this twice now, once with a motorbike roaring past. The other was last night at the theatre sitting 2nd row back near bass speakers ro watch a west end musical about a rock group. It wasn't so much the volume as the thump of the bass which seemed to male my heart thump harder too. It made me feel a bit odd & I broke out in a sweat. I had to be asked to be moved further back,… Continue

Added by chris gidney on September 4, 2016 at 9:12 — No Comments

4 years post op !

Goodness me ! it is now 4 years since my tick tick thump Sorin valve became part of me. All is well, no problems INR spot on thanks to Coagucheck. Lots of sport, healthy eating (a few cheeky reds) and an early reitirement deal. thanks yet again to Graeme for this fantastic site. Happy summer to you all. Love Kevin

Added by Kevin David Parvin on August 13, 2016 at 18:01 — 2 Comments

Warfarin by the Kilo.. :-)

OK - hows this for a statistic! Since my Aortic Dissection and replacement of my aortic Valve 13 YEARS AGO last week - I have chewed my way through 1/3 of a kilo of warfarin ..and 2 kilos of Atenolol.. scary! 13 Down - 17 to go! :-)

Added by Graeme on April 28, 2016 at 17:31 — No Comments

ticking valve

Hi , new on here.Had my titanium aortic valve 25 years ago,am fit,but my ticking valve has gradually changed to a normal sounding heartbeat, is this normal?. 

Added by david moore on March 10, 2016 at 16:41 — 1 Comment

Health Update & Membership: Mechanical Heart Valve Support Group

Hi all,

hope all had a lovely Xmas and have started a bright and shiny New Year on a positive spin.... and the Xmas pounds (certainly hope not kilograms!) are now being attacked vigorously in the gym and bracing 10 mile bicycle rides etc!



Firstly my health update. Radiation treatment now all finished and side effects fading quickly.. so it seems .. so very happy on that front. First check-up end of Feb as have to wait for radiated bits to cool down (joke!) so tests…

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Added by Graeme on January 19, 2015 at 15:01 — 2 Comments

Atrial Fibrillation

Hi all,

I stumbled upon this forum and I’m so glad that I did. Reading your posts, I have already learned much about my condition from the people who really know. Thank you to every member who has posted on this site.

I have had aortic stenosis for many years and knew that I would need a valve replacement sooner or later. I am now 59 and had my artificial aortic valve (27mm St Jude) and replacement ascending aorta (34mm gelseal) put in four weeks ago, so I am still in…

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Added by Steve Blake on December 30, 2014 at 11:09 — 4 Comments

Help!

i am living with a mechanical aortic valve (i am 17) and trying to convince my dr 2 let me play basketball for the school, can someone help me get some credible sites and some proof to backup that I can play basketball 

Added by quintin david meldrem on October 7, 2014 at 5:39 — No Comments

** Important Information for all MHV members**

Hello everyone - I hope you are all well, healthy and happy and enjoying our wonderful summer (Northern Hemisphere!)

 

Firstly, my apologies for not being more active on both this, our  (MHV site) over the last 18 months or so, but running our own (very busy now!) specialist travel business and generally really living life to the full (:-) ) has kept…

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Added by Graeme on July 25, 2014 at 13:33 — 14 Comments

Charity Bike ride - 48 miles

Hi All

Just wanted to let you all know I did a 48mile (~77km) charity bike ride at the week, for British Heart Foundation. Two years post Op and I did it under my own power – I’m very happy to report I feel fine. The hills were tough but the weather was lovely. I had a few pub stops along the way :)

Best regards

Martina

Added by Martina on May 20, 2014 at 20:35 — 3 Comments

Hodgkins Strikes Back!

so here's the deal: in 1975 when I was 19 years old, I was diagnosed with Hodgekins Lymphoma (stage three B,mixed cellularity, for all you amateur oncologists out there) and treated with both radiation (400 rad upper mantel) and chemotherapy ( four drug protocol based on CCNU). Been in remission ever since, though I have had to cope with some problems (GERD, shingles, etc) resulting from either the disease or the treatment. Four weeks ago, I had a mechanical aortic valve (Medtronic) installed.… Continue

Added by shutterlab . on April 25, 2014 at 5:37 — 3 Comments

herbal medicines with Acitrom(warfarin)

 I am from India, my mitral valve replacement done in May 2007, I am patient of hypertension too. due to medicines of hypertension now i started suffering with savior IBS (irritable bowel syndrom) and constipation. i consulted many cardiologists and gastroenterologist  but result is not satisfactory. some one can help me whether i can take Acitrom(warfarin) with herbal medicine with close watch on INR value.

what other things may happen with herbal medicine apart from change of INR…

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Added by sunil kumar singh on December 21, 2013 at 6:34 — No Comments

Well its been almost exactly 5 years since my last op, I am told im going to have to have one in the next couple weeks the valve i have now is to small as im only 16 so im still growing and the curre…

Well its been almost exactly 5 years since my last op, I am told im going to have to have one in the next couple weeks the valve i have now is to small as im only 16 so im still growing and the current valve is not big enough to help me so I might be spending another thanksgiving at Mayo

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Added by quintin david meldrem on November 20, 2013 at 19:27 — No Comments

5 month post op check

Hi All, 

Sorry not been on this site for a while. Just to keep you posted as its 5 months since my aortic valve replacement.

I saw my Cardiologist this week and i had a few questions answered. I was due to have ascending aorta replacement during the op but since found out i had a twist in the aorta that they managed to straighten but forgot to ask how!

I also found out something interesting as i didn't have a Bicuspid valve, i had a Quadricuspid valve (4 leaflets), but…

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Added by Lee-Anne Bray on June 29, 2013 at 21:23 — 1 Comment

Completed 45km Charity bike ride

Hi all,

I'm very pleased to say that yesterday I completed a 45km charity bike ride, for British Heart Foundation, around some lovely Suffolf Villages. It was a very well organised event. It’s about 14 months post Aortic Valve & ascending Aorta replacement. It was so good to complete it. Today I’m a little bit tired :)

Take care

Martina

Added by Martina on June 24, 2013 at 14:52 — 1 Comment

Hi Martina,  Sorry not replyed sooner as no computer for a while! Thanks for your reply.  Hope you are keeping well and still busy cycling!! My scar seems to be feeling alot better and think the bio …

Hi Martina, 

Sorry not replyed sooner as no computer for a while!

Thanks for your reply. 

Hope you are keeping well and still busy cycling!!

My scar seems to be feeling alot better and think the bio oil is helping. My aches and pains are easing thanks. 

I have  just been given anti biotics as ive got a throat infection  but dr agreed for me to hold back until tomorrow before i start takng them and see how i feel as warfarin levels will be messed up and just…

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Added by Lee-Anne Bray on May 10, 2013 at 22:22 — No Comments

mechanical heart valve: My story

About four years ago, I had a chest x-ray. Something didnt look right, so they had me do a cat scan. Then found an aneurysm in my aorta. Close to my aortic heart valve. It was 4.7cm. Every year I had another cat scan. Last year they found it had grown to 5.5cm. And decided to operate before it burst. During my pre-op exam they discovered my aortic heart valve didnt sound or look right. So they decided to replace it with a mechanical valve. That happened on Jan. 14 of this year. Everything is…

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Added by michael pierce on May 1, 2013 at 23:16 — No Comments

One Year on

Hi All

I'm one year post Op and all is well - I'm feeling great.

I just wanted to say a BIG thank you to all on this wonderful site - you helped me through the tough times Pre & Post Op and it was very much appreciated.

Take care

Best regards always

Martina

Added by Martina on April 13, 2013 at 17:31 — 4 Comments

Anniversary~~

    Feb.08- 2013 

STARR-EDWARDS valve -39 yr. ago

Going for 40~~~~

Smiles~~~Anne Jones

Added by Anne Jones on February 9, 2013 at 1:56 — 2 Comments

Update

Hi all... Thought I should post an update as its been a while since I was on the site.. So much been happening (non valve related) and still waiting for the op... been cancelled 3 times on account of a number of infections, odd as I normally dont get ill.. (must have been the fear lol).. but now re-scheduled for 13 Feb in Aberdeen... Sorry for the long absence.. Hope everyone is doing well.

Added by Antony Bambrough on February 7, 2013 at 1:19 — No Comments

Op due on Wednesday

Well bags packed off for my 5* All inclusive hols to Derriford hospital tomorrow ready for op on Wednesday. ( aortic valve and Ascending aorta replacment). Think i just need to get my "huggy" ready and hopefully sorted! Will keep you posted in hopefully week or so! x

Added by Lee-Anne Bray on January 14, 2013 at 21:15 — 18 Comments

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