Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

June 2012 Blog Posts (12)

6th time lucky?

Been called in again today for op tomorrow. Can't take this stress much longer so hoping it all goes ahead and I can get this thing behind me. Be in touch soon,

Neil

Added by Neil Buckland on June 26, 2012 at 12:18 — 7 Comments

6 months on I Just feel so much better now

Hi All ,I haven't been on as there isn't a lot to report except that I feel so good now .I can walk without having to stop and rest every 5 minutes and after doing the cardiac rehab at at my local NHS this helped me both physicaly and most important mentaly to get my life back again and a big thanks to them.

My partner has been diagnosed that she to will have to have a Aortic vale replaced. !! It's a 1 in a million that we both had it from birth and she is scared having looked after me!!!… Continue

Added by AIDAN KILLORAN on June 19, 2012 at 22:12 — 1 Comment

Cardiac Surgeon

Got my appointment through yesterday to see the Cardiac Surgeon, a specialist in Mitral Valve Surgery at Leeds General Infirmary on August 7th.

Also saw my Cardiologist at Pinderfields, Wakefield to check I was OK after the Angiogram.  I will be discharged back to the Cardiologist at Pinderfields after Surgery and he has made me an appointment for 6 months by which time I will have had surgery.

Seems to be gathering momentum quite quickly. Funny these days  how life seems to be…

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Added by Janet Hogger on June 19, 2012 at 7:08 — 6 Comments

Back to work now

Hi All

Just wanted to share my good news - I start back at work this Monday 9wks post Aortic valve replacement. I'm very happy about this, well probably more happy that I'm well enough to consider returning to work than the act of returning to work :) It will be a phased return, mornings only Mon,Wed & Fri for a few weeks then see how I go.

I would like to thank you all for your support over the past few months - I have found this site i.e. the people on it so…

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Added by Martina on June 15, 2012 at 19:38 — 7 Comments

Pre Operation preperation

I am due to have a St Jude’s Aortic valve fitted on August 3rd 2012 – my question is this - although reasonably fit, not overweight, should I try and get a little fitter – loose a couple of kilos. In addition, I do enjoy a couple or three glasses of wine of an evening, should I cut this out all together.

Added by Kevin David Parvin on June 15, 2012 at 9:33 — 6 Comments

wil I, won't I

Been called in again. I'll be travelling down this evening for potential op tomorrow. Petrified as always but really hoping that it's not cancelled again as I just want to get over this hurdle now, get it out the way and concentrate on recovery.

Thanks for everyones advice and hopefully I'll be back soon with stories of the op.

Best wishes to everyone,

Neil

Added by Neil Buckland on June 13, 2012 at 7:34 — 6 Comments

Replacement aortic valve and ascending thoracic aorta aneurysm

Hi everybody.    Next July I will have replacement aortic valve surgery for mechanical one.  Since March my surgery was postponed 3 times for things about my health like a flu and so on.  But, it will be next July.  But, now I had a Ct Scan last week and I have also an ascending thoracic aorta aneurysm.  That is new for me.  The surgery will still be next July.  If someone had that experience of have to replace the aortic valve and have an aneurysm too that could tell me about it.  I will…

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Added by Estrella Ramirez on June 13, 2012 at 2:45 — 10 Comments

Hello

Hello all. Im 38 living with my patner and i am a full time mum for my 3 and 4 year old. I went to my GP last August feeling under the weather and came out a bag of nerves to be told i had a heart murmer! i was sent to hospital for tests and admited with pneumonia and suspected Endocarditis.Fortunately i didnt have Endocaditis! Had an echo and diagnosed with a bicuspid aortic valve and stenosis. Recently had my 6 month follow up to be told its now severe stenosis and now on waiting list for…

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Added by Lee-Anne Bray on June 4, 2012 at 21:23 — 9 Comments

1 1/2 years

I had mine put in on October 1 2010

I had a very hard time coming thru surgery mostly due to the first valve didnt work and they had to start over........was in surgery for almost 8 hours

Have been walking up to 2 miles every day now. I am doing much better.Befor the surgery I was always tired and couldnt do much.

Added by Leonard Dale Trent on June 3, 2012 at 18:54 — 2 Comments

Hello

Thanks for the welcome Graeme. I am a 60 year old retired NHS Physiotherapist.  My sister (65 years) died earlier this year and the post mortem report showed that she had "markedly abnormal mitral valve leaflets and enlarged heart" which resulted in her death.  I recalled a time many years ago when a GP advised me that I had a heart murmur.  As I was young and fit I forgot about it.  Decided to see my GP after my sister's death.  He picked up the heart murmur and referred me urgently to the…

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Added by Janet Hogger on June 3, 2012 at 18:25 — 5 Comments

5th time lucky??

Yep, you've guessed it..cancelled.

They wanted me to go back the next day early for a op the following day..I refused and said that I would come in on the evening (as I have been admitted now..and end up just sitting there getting stressed) just as well as that one was cancelled too!

Tried my best to just switch off this weekend..just waiting for that call now.


Whats the 'post op sneeze!?'

Hope everyone is well. Speak soon,

Neil

Added by Neil Buckland on June 3, 2012 at 7:10 — 5 Comments

On warfarin? Want to see if self testing your INR is for you?

Hi,

Roche have just launched a new eCommerce site for CoaguChek.  Please have a look and let me know your thoughts. 

https://shop.coaguchek.com/

We intend to add some MHV and peadiatric content in the next version  - all suggestions welcome!

Kind reagrds, Ali

Added by Allison Rossiter on June 1, 2012 at 21:30 — No Comments

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