Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

All Blog Posts (122)

Op due on Wednesday

Well bags packed off for my 5* All inclusive hols to Derriford hospital tomorrow ready for op on Wednesday. ( aortic valve and Ascending aorta replacment). Think i just need to get my "huggy" ready and hopefully sorted! Will keep you posted in hopefully week or so! x

Added by Lee-Anne Bray on January 14, 2013 at 21:15 — 18 Comments

Happy New Year to you all

Hi All

Just wanted to wish you all a very Happy New year & thank you all again for all your support over the last year.

I continue to recover very well, now over 8 months post Op.

Hope you all have a fantastic new year.

Warmest regards

Martina

Added by Martina on December 30, 2012 at 23:10 — No Comments

Exercise and reduced vital capacity

I had my aortic valve replaced in July and generally have recovered really well. In the past I have been very fit but had to reduce my exercise significantly for the last 4 months before surgery. 12 weeks after my op I started running again and going to the gym but it seems to be a very slow improvement. Does anyone know what sort of effect a heart valve replacement has on your aerobic capacity?

Added by Peter Rodin on December 24, 2012 at 12:34 — 1 Comment

4 months post op, Mitral Valve Replacement with St Jude mechanical heart valve

I have spent the last 7 weeks in Cardiac Rehab twice a week.  I found it really beneficial and you can work gently at your own pace.  Our local council offer a discount for their fitness programmes under the exercise prescription scheme.  The Physio at Cardiac Rehab completes the paperwork and I'll get an appointment after Christmas for a session with one of the trainers for my own circuit.  Lots of heart friendly classes to join as well.

I saw my Cardiologist yesterday and had a…

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Added by Janet Hogger on December 19, 2012 at 9:21 — 4 Comments

I've had the op

Hi everyone, well I had the op on 7th Nov at Harefield, so now almost 3 weeks post-op.  I'm happy to report it went very smoothly, no complications apart from picking up a urinary tract infection.  So glad I chose a mechanical valve as I wouldn't want to go through this again.  I was in hospital for 9 days as my inr took a little while to come up into range.  Was discharged on the Friday and went to my local anticoagulant clinic on the Monday morning where it had dropped to 1.2.  So I've…

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Added by Sue Herbert on November 27, 2012 at 10:28 — 2 Comments

10 weeks post op

Had my discharge appointment with the surgical team 8 weeks ago and was put on 1.25mg of Bisoprolol(beta blocker) to reduce my heart rate which was around 100 at rest and higher on activity. I'm now back under the Cardiologist and have an appointment with him in December.

I started Cardiac Rehab which I think is called Phase 3. I have found it very good and get a lot out of it. The main attendees are elderly gentlemen who have had heart attacks/events. I appear to be the only… Continue

Added by Janet Hogger on November 8, 2012 at 8:33 — 3 Comments

Visit to the surgeon!

Hi i met with the surgeon today. Great to be able to put a face to the name! He explained all whats to happen as i need aortic valve replacement and also ascending aorta replacement. Aorta not too dilated yet but will progress within the next 5 years so he said will replace it the same time. I asked how long will i have to wait and i think i was shocked as i can have the operation in November. But he also said with 2 young children perhaps i may want to wait till January so i can enjoy xmas.…

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Added by Lee-Anne Bray on October 22, 2012 at 20:00 — 3 Comments

Sharing couple of pics from hospital

Maybe I m a bit barmy but wanted to have some memories from the very first day after the surgery. If I had my way I would have had the surgery recorded but didnt dare asking. Is fascinating how clever and brilliant surgeons and medical staff are.

So first pic waving is in ICU when they woke me up. All I remember is that I was starving, I was laughing lots (morphine) and the nurse was feeding me yogurt.

I also remember that my back, lungs felt like burning and wanted nothing…

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Added by nic nic on October 21, 2012 at 19:27 — 3 Comments

My Mechanical Heart Valve is 1 Year old today !

12 months ago today I had my surgery at St Georges Hospital to replace my Aortic valve with an ATS open pivot mechanical valve as well as a graft to replace a section of my ascending Aorta.
 
It was a two year wait for me from diagnosis to surgery. Without any…
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Added by John French on October 6, 2012 at 7:00 — 5 Comments

2 Months Post Op !

How time zooms along!  - Almost 2 months in since my replacement valve. All going well, tired in the afternoons and early evening, and a very load thumping (no clicking) of the heart at times.

I am managing 45 minutes of walking (being pulled along by my 55 kg Beauceron) in the mornings, followed up by about half an hour's cycling in the afternoon ( no Beauceron at this stage).

My cardiolog is happy with the outcome of operation and my recovery. I am having trouble getting my…

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Added by Kevin David Parvin on September 30, 2012 at 16:44 — 3 Comments

Another very good day

Just to share again I m day 12 post op. Today in the morning I walked to the village (about 1 mile away) had a look at the market stalls and had a nice coffee and a bacon bap. My mum was cleaning so she wanted me out the house lol. Than a friend called me and asked me if I wanted to go to Maplin and look around and I did as I wanted a TV tuner for my laptop. 

About 2 PM I went with mum and another two friends to Tesco and did a bit of shopping (no lifting but lots of walking) and in…

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Added by nic nic on September 29, 2012 at 19:15 — No Comments

My bicuspid valve story

I m 38 (39 nearly) never really been sick and had no symptoms.

Back in the winter or spring I had a real bad cold. My GP listened to my heart and told me that I have a heart murmur. So I was sent to see the cardiologist at Frimley hospital. He confirmed I have a bicuspid valve which will require replacing with a mechanical valve eventually in the next few years.

But in May I was asked to go an meet the surgeon from St George Dr Kanagasabay who told me…

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Added by nic nic on September 27, 2012 at 17:41 — 12 Comments

4 weeks post op

I'm glad to be at this stage.  The pain and discomfort is subsiding and I'm now walking 30 mins a day. I go for pre assessment for rehab next week.  I'm concerned that my heart rate is over 100.  Before the op it was around 60.  I hope it will settle in time.  I'm at the Warfarin clinic twice a week as my INR is not yet in therapeutic range.  Still getting used to the thump click of the St Jude mechanical heart valve replacement for my mitral valve.  Very disconcerting when you hear it…

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Added by Janet Hogger on September 26, 2012 at 4:02 — 2 Comments

Finished cycling holiday ~5months post Op

Hi All

 

Just wanted to share my happy news with you all. I’ve just been on a cycling holiday in Andalucia – beautiful spot in Spain but very hilly! It’s been just over 5 months since my MHV Aortic Valve & Ascending Aorta replacements. I’m 47yrs old and like cycling, I wanted to get back to cycling as soon as possible – I had an electric motor fitted to my bike and had been cycling again post ~2.5months since Op. I hired an Electric bike on holiday – a pedalic i.e. have to…

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Added by Martina on September 23, 2012 at 19:15 — 4 Comments

ANNIVERSARY

SEPTEMBER 21 1960

Today marks 52 years since the first successful artificial valve implant in a human

The valve was the STARR-EDWARDS.

 

 

 

 

Added by Anne Jones on September 21, 2012 at 19:45 — No Comments

Feeling my heartbeat

I'm 2 weeks post-op.  From reading posts before my surgery, I was expecting to hear my valve. It was a bit startling at first, but I have gotten used to the noise.  What I'm struggling with now is feeling my heart-beat.  No doctor or nurse seems to understand this and they keep telling me my pulse rate is fine. I'm trying to explain to them it doesn't feel fast, but feels much stronger, I constantly feel it.  Is this normal? Will it start to decrease or is this something I will always have?…

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Added by Rebecca Wilson on September 21, 2012 at 19:34 — 4 Comments

First Artifical Valve Implant

Dr. Albert Starr  was the first Cardiac surgeon to successfully implant an artificial valve in a human being.  Lowell Edwards  a pioneer in Cardiac several years older came to Dr Starr to discuss an artificial heart, Dr. Starr suggested a valve first .  Together they implanted their design in several canines , who lived and were thriving .  They decided it was time for a human implant. The female patient was dying in an oxygen tent, she…

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Added by Anne Jones on September 18, 2012 at 13:46 — 1 Comment

The BIG Question...MHV or Tissue valve? The bogeyman = Warfarin

** Before you read this blog post in its entirety let me reiterate that this decision (MHV v tissue valve) is an incredibly personal (and difficult!) decison and that their are nearly equal advantages to having one procedure or the other. This decision is ultimately made between yourself and your medical professional and should be based primarily on their professional opinion and recommendation.



Background: It appears that their 'seems' to be quite a spirited difference of opinion…

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Added by Graeme on September 9, 2012 at 12:00 — 2 Comments

Thanks Graeme for all your hard work - I really want this Website to grow and continue to help other

Hi Graeme, I completely understand about the introduction of subscription fees. It must have taken a lot of your time over the years to 'control' this site. Thank you very much for starting it and organising it for so long. It has helped me so much over the past 10 months during the very stressful time of Pre & Post OP. It's hard to put into words how helpful this site has been for me & my family and I know it will continue to help me. I wanted to give something back to everyone on…

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Added by Martina on August 31, 2012 at 18:52 — 3 Comments

Day 1 center de readaptation

Hi All 

The operation was a great success, the only bad part for me were the mild hallucinations whilst in intensive care. The team at clinique Pasteur  http://www.clinique-pasteur.com/front  were fabulous  they made each step of the journey as confortable as possible.

I have now been transfred to my « centre de readaptaion at midi gascongne »  http://www.midi-gascogne.com/  today is…

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Added by Kevin David Parvin on August 13, 2012 at 15:28 — 1 Comment

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