Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

All Blog Posts (122)

Op date for Mitral Valve Surgery

Saw the cardiac surgeon earlier this week at Leeds. I now have my op date - August 28th.  Sooner than I thought.  He will try for repair first but if not a mechanical heart valve seems the better choice.  Find myself in a bit of a spin and trying to get organised.  I think alot of displacement activity is going on! Wondered if anyone had been told that a mitral valve repair would be tried for, but ended up with a mechanical heart valve?

Any practical tips on getting prepared for…

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Added by Janet Hogger on August 12, 2012 at 8:16 — 14 Comments

mhv allota

Hi everyone on the site

i have been reading some of the posts and if anyone want advice on living with a mhv, and what effects it has please drop me aline most of the questions on hear I have a answer for, my valve will be 26 on the 12/8/2012 so carnt wait[ my ex wifes birthday by the way ] my valve is working fine its the rest of me that is getting creeeeky I am 56 years old so come on bring it on I would like to help if I can.

regards Stuart.

 

 

 

Added by Stuart hampton on August 7, 2012 at 19:08 — No Comments

A step closer!

Hi at last eventually had angiogram yesterday to check arteries and all looking good.Aortic valve is 'very distorted'.

Now going to be referred to surgeon at Derriford Hospital for the valve replacement.

It seems so much more real again now as waited so long for the angiogram and also spent a day in hospital 2 weeks ago for angoigram to be cancelled at 4pm!

Waiting time is around 16 weeks so hopefully sorted before xmas!

Added by Lee-Anne Bray on August 3, 2012 at 21:27 — 3 Comments

At Home

Hi Everyone, well after 2 days in ICU and 6 days on the ward I went home.

Today is day 3 at home and I am feeling fantastic, my only setback having been "the sneeze" (despite Graham's warning), following which out came the strong pain killers. The most important piece of equipment without doubt is that "COMFY" blanket!:-)

I am being careful and doing everything at a slow pace as recommended, but notwithstanding the same I can't describe how much more alive I feel now and I am…

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Added by Dave Millard on July 26, 2012 at 12:39 — 6 Comments

Anesthetist meeting over and done with !

Hi All ! Had my meeting with the anesthetist yesterday - far too much detail :-)) , number of tubes etc etc...  All set for the big day, I remain positive, thanks not only to friends and family but also to the support this site and its members offer. Cheers Kevin

 

Added by Kevin David Parvin on July 24, 2012 at 13:45 — 3 Comments

Op done

Hi Everyone,

Had My Aortic Valve replaced yesterday, 16th July, with a MHV. All going well and they had me up and walking this afternoon. Thank you for all the good advice, positive thoughts and kind words. Will post more when I am discharged and at home. For those still waiting, keep up the positive thought it really helps.

And finally welcome back Neil, see you in a few weeks or so!

Dave

Added by Dave Millard on July 17, 2012 at 20:24 — 7 Comments

done...finally

It's been a long time but I have finally had the op and am now back at home. Thanks for all the messages from everyone. It beens a long time as unfortunatley I had complications (which are rare!). Had the heart surgery on the 27th June which went really well. Recovery was quick and they were talking about sending me home after 5 days. Unfortunately my own heart rate was not recovering once the pacing was switched off so they kept me in for it to recover. It didn't so I had to have a…

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Added by Neil Buckland on July 17, 2012 at 15:22 — 5 Comments

Am I destined to eat boring food. Shoot me now!

So had a lovely red curry and a glass of wine last week on tuesday. Woke up wednesday feeling icky went to my trusty INR home test kit and found it was 1.8 (my range is 2.5 to 3.5). How and why could something as innocent as red curry and one glass yes only one glass of wine cause so much drama!!! Dosing at 11.5mg of warfarin at the moment and backing it up with clexane. Just came good today one week later on monday after regular INR blood work and a curious Dr Muir wondering what food I…

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Added by Vittoria Moratelli on July 16, 2012 at 11:01 — 1 Comment

Pre Op

Hi guys, Had my pre-op (xray, blood test, breathing, etc) yesterday and all is ok. Now starting to panic, no choice going forward, Monday is the day. Looking forward to feeling better after the op and letting you know how easy it all is :-). Cheers, Dave

Added by Dave Millard on July 10, 2012 at 16:52 — 6 Comments

6th time lucky?

Been called in again today for op tomorrow. Can't take this stress much longer so hoping it all goes ahead and I can get this thing behind me. Be in touch soon,

Neil

Added by Neil Buckland on June 26, 2012 at 12:18 — 7 Comments

6 months on I Just feel so much better now

Hi All ,I haven't been on as there isn't a lot to report except that I feel so good now .I can walk without having to stop and rest every 5 minutes and after doing the cardiac rehab at at my local NHS this helped me both physicaly and most important mentaly to get my life back again and a big thanks to them.

My partner has been diagnosed that she to will have to have a Aortic vale replaced. !! It's a 1 in a million that we both had it from birth and she is scared having looked after me!!!… Continue

Added by AIDAN KILLORAN on June 19, 2012 at 22:12 — 1 Comment

Cardiac Surgeon

Got my appointment through yesterday to see the Cardiac Surgeon, a specialist in Mitral Valve Surgery at Leeds General Infirmary on August 7th.

Also saw my Cardiologist at Pinderfields, Wakefield to check I was OK after the Angiogram.  I will be discharged back to the Cardiologist at Pinderfields after Surgery and he has made me an appointment for 6 months by which time I will have had surgery.

Seems to be gathering momentum quite quickly. Funny these days  how life seems to be…

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Added by Janet Hogger on June 19, 2012 at 7:08 — 6 Comments

Back to work now

Hi All

Just wanted to share my good news - I start back at work this Monday 9wks post Aortic valve replacement. I'm very happy about this, well probably more happy that I'm well enough to consider returning to work than the act of returning to work :) It will be a phased return, mornings only Mon,Wed & Fri for a few weeks then see how I go.

I would like to thank you all for your support over the past few months - I have found this site i.e. the people on it so…

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Added by Martina on June 15, 2012 at 19:38 — 7 Comments

Pre Operation preperation

I am due to have a St Jude’s Aortic valve fitted on August 3rd 2012 – my question is this - although reasonably fit, not overweight, should I try and get a little fitter – loose a couple of kilos. In addition, I do enjoy a couple or three glasses of wine of an evening, should I cut this out all together.

Added by Kevin David Parvin on June 15, 2012 at 9:33 — 6 Comments

wil I, won't I

Been called in again. I'll be travelling down this evening for potential op tomorrow. Petrified as always but really hoping that it's not cancelled again as I just want to get over this hurdle now, get it out the way and concentrate on recovery.

Thanks for everyones advice and hopefully I'll be back soon with stories of the op.

Best wishes to everyone,

Neil

Added by Neil Buckland on June 13, 2012 at 7:34 — 6 Comments

Replacement aortic valve and ascending thoracic aorta aneurysm

Hi everybody.    Next July I will have replacement aortic valve surgery for mechanical one.  Since March my surgery was postponed 3 times for things about my health like a flu and so on.  But, it will be next July.  But, now I had a Ct Scan last week and I have also an ascending thoracic aorta aneurysm.  That is new for me.  The surgery will still be next July.  If someone had that experience of have to replace the aortic valve and have an aneurysm too that could tell me about it.  I will…

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Added by Estrella Ramirez on June 13, 2012 at 2:45 — 10 Comments

Hello

Hello all. Im 38 living with my patner and i am a full time mum for my 3 and 4 year old. I went to my GP last August feeling under the weather and came out a bag of nerves to be told i had a heart murmer! i was sent to hospital for tests and admited with pneumonia and suspected Endocarditis.Fortunately i didnt have Endocaditis! Had an echo and diagnosed with a bicuspid aortic valve and stenosis. Recently had my 6 month follow up to be told its now severe stenosis and now on waiting list for…

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Added by Lee-Anne Bray on June 4, 2012 at 21:23 — 9 Comments

1 1/2 years

I had mine put in on October 1 2010

I had a very hard time coming thru surgery mostly due to the first valve didnt work and they had to start over........was in surgery for almost 8 hours

Have been walking up to 2 miles every day now. I am doing much better.Befor the surgery I was always tired and couldnt do much.

Added by Leonard Dale Trent on June 3, 2012 at 18:54 — 2 Comments

Hello

Thanks for the welcome Graeme. I am a 60 year old retired NHS Physiotherapist.  My sister (65 years) died earlier this year and the post mortem report showed that she had "markedly abnormal mitral valve leaflets and enlarged heart" which resulted in her death.  I recalled a time many years ago when a GP advised me that I had a heart murmur.  As I was young and fit I forgot about it.  Decided to see my GP after my sister's death.  He picked up the heart murmur and referred me urgently to the…

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Added by Janet Hogger on June 3, 2012 at 18:25 — 5 Comments

5th time lucky??

Yep, you've guessed it..cancelled.

They wanted me to go back the next day early for a op the following day..I refused and said that I would come in on the evening (as I have been admitted now..and end up just sitting there getting stressed) just as well as that one was cancelled too!

Tried my best to just switch off this weekend..just waiting for that call now.


Whats the 'post op sneeze!?'

Hope everyone is well. Speak soon,

Neil

Added by Neil Buckland on June 3, 2012 at 7:10 — 5 Comments

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