Living with a Mechanical Heart Valve: Click.Tick.Thump. Love It!

Support Group for Mechanical & Artificial Heart Valve Surgery & Using Warfarin

Hello all. Im 38 living with my patner and i am a full time mum for my 3 and 4 year old. I went to my GP last August feeling under the weather and came out a bag of nerves to be told i had a heart murmer! i was sent to hospital for tests and admited with pneumonia and suspected Endocarditis.Fortunately i didnt have Endocaditis! Had an echo and diagnosed with a bicuspid aortic valve and stenosis. Recently had my 6 month follow up to be told its now severe stenosis and now on waiting list for replacement. Now awaitng dates for CT scan and angiogram to check measuremnts of the ascending aorta as  it is enlarged. Ive had time to think and get my head around it and i am now feeling positive about it all! (well today anyway)!!

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Comment by Lee-Anne Bray on June 12, 2012 at 19:46

Hi Catriona, thanks for your message. Great to be able to talk to someone from Cornwall who went to Derriford. Thanks for your kind words about Derriford, i've heard lots of good comments about  Derriford. Wow it all happened quickly for you. I know how you felt, i just thought i was becoming really unfit and assumed i was just worn out from the children! Treliske have told me its a 3 month waiting list for Derriford. Did you have to wait long? Im now waiting an angiogram and CT scan but think it will be delayed as had root canal 5weeks ago and still got a tooth problem. Hoping no infection but seeing dentist tomorrow. Ironic how i've never had a Tooth problem but happens when your waiting for an op!

Comment by Lee-Anne Bray on June 11, 2012 at 22:53

Hi Neil, thanks for your  message. I cant believe your op has been cancelled 4 times. It must be so frustrating for you, its bad enough waiting for 1 op date.I feel the same, positive one day and worried sick the next! I'll keep my fingers crossed you'll get the call soon! After you can tell me all the do's and dont's! Good luck.

Comment by Catriona Carnson on June 11, 2012 at 14:44

Hi Lee-Anne,

I can understand your emotions Lee-Anne.  I was jogging along with my life with no idea how knackered my heart was until last November.  6 months later I now have a mechanical mitral valve and am getting stronger with every day.  I see you live in Cornwall like me and I assume you'll be going to Derriford.  I can't imagine a more caring and professional bunch of people to have taken care of me at the most traumatic of times.  Any advise I can offer just ask.

Thinking of you,Catriona 

Comment by Neil Buckland on June 11, 2012 at 8:39

Hello,

Just a quick message to say I know exactly how you feel. I'm still waiting for the op (been cancelled 4 times now) and the anxiety is killing me...sometimes I feel positive and want the op done and out the way and somedays I feel terrible and can't cope with the idea! Sounds like you've accepted it which is good. Wish you all the best for a op date and speedy recovery! Best wishes,

Neil

Comment by Lee-Anne Bray on June 7, 2012 at 20:44

Hi Madeleine, Thanks so much for your reply. I've read quite alot of posts on this site and suprised how many with BAV. So your the 2nd female i've chatted to on this site with BAV and what a comfort it's been for me. Especially as same age with 2 children! i do worry how recouperation will be with kids around.But hey wouldn't want it any other way! i've been suffering with a tooth problem and had root canal done 4 weeks ago but still very sensitive, awaiting crown next week.A bit worrrying as reading posts some still recommend anti-B's! Hoping to get all dental work sorted before any op date. Thanks again as i know im not the only one needing this done!

 

Comment by Madeleine M on June 7, 2012 at 8:34
Hi, I had my BAV and aortic root replaced 6 months ago. I'm a 39 year old female with two children aged 8 and 11.

I had known for years that surgery would be needed at some point, but it still came as a shock when I found that I needed it. Waiting for a date is the hardest thing. Six weeks after surgery things should be quite good, and three months after, you should be feeling better than before.
Comment by Martina on June 5, 2012 at 20:29

Hi Lee-Anne, I'll be happy to help.

Best regards

Martina

Comment by Lee-Anne Bray on June 5, 2012 at 20:04

Hi Martina, thanks for your reply. Your the first female i've found on a forum to have had a bicuspid aortic valve as seems to be more common for males. Im so pleased you  are getting on so well from your surgery. Im sure i will have some questions for you at some point and if you have any top tips for me that would be great!

Thanks,

Lee-Anne

 

Comment by Martina on June 4, 2012 at 22:37

Hi Lee-Anne, I had a bicuspid Aortic valve too - ~7wks ago I had it replaced along with the Ascending Aorta as it had enlarged. I'm recoverying well. I'm sure you will find this website very helpful, I know I did/do. I found it very calming while I was waiting for the Op -knowing others had been through or are going through what I am.

Best regards

Martina

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